So now I’m on hemodialysis…

So now I am on hemodialysis. That’s the dialysis where there’s needles and such but I don’t have to have that yet, since my fistula isn’t in place yet. Don’t worry I’ll explain.

It all started out on a Friday. I woke up and felt horrible. I was shivering and I had a feeling I needed to do an exchange. So I got up and did an exchange. Lo behold I looked at the bag, and it was cloudy. It should be nice and clear but not this bag. It was pretty cloudy. So I started the flush process and called the dialysis clinic. I was told that I had to do the flush and then put antibiotics in the bag and let it dwell for 6 hours. Ok. No problem I said and I thought it ended.

First, when we went to use the antibiotics, I realized that we didn’t have syringes to do the transfer! So I called the unit and Meesh ended up picking up some at the clinic. Finally Meesh was able to do the antibiotics. At this point, I was feeling horrible and could hardly sit up.

A few hours later, after I took the antibiotics, I was not getting any better. Either I was not getting enough antibiotics or it wasn’t working. Then Meesh took my temp and realized it was 103.5 or something like that. The point being it was 103 or higher. That was the bell that told Meesh I need to go to the ER. So after some scheduling things around, we got my dad to take me there. Meesh ended up staying at home because she needed to stay there to get our new tv. (Yes, we got a new TV and it’s very big. 73″. You’ll find out more about it at hello! yoshi)

So me and my dad were at the ER. We were in the waiting room for about 3 hours. Now mind you the nurse when she finally saw me for triage told me she would put me on the urgent list, and it still took about 2.5 hours to get me inside the ER to be treated. Meanwhile while we were there, a gentleman who had his leg cut up by a skillsaw was bleeding out of his clothes. Obviously, this guy should have been taken care of before me, but he was still waiting in the waiting area when I went in! Sometimes, the triage at our hospital (I will not mention who) can be a bit crazy.

So I went in the ER and they took care of me nice, and I ended up getting the same doctor from when I was in the ER for my stroke. I also found out from some nurses that I was something of a legend at that hospital. Probably because I was the youngest stroke victim they’ve ever had. I wasn’t even 40 yet. I was 39. Crazy, I know.

So the doctor was on the fence. “Do I admit you in the hospital or not.” In the end, they decided to do so, because after some thought, the Nephrologist on duty had said that he wanted to pull my PD catbeter and patch me up and put a “perm catheter” in for hemodialysis.

I was then admitted to the hospital, this was about 8pm, about 8 hours after I went to the ER to get taken care of. They admitted me to the renal floor, and I finally got to be able to drain myself and they took that drain off to the lab to do some tests. I’m not quite sure what they are, but I’m sure they’re important.

dscf0070At 10pm, I was finally taken down to the OR where they finally yanked my PD catheter. I have to express my sorries to the surgeon that put it in. I didn’t want to ruin her work! But I have to admit now that it’s a relief. No more feeling bloated or I can’t eat because my belly is so full of liquid. So they took it out and I was on some serious meds. I have no idea what Really happened, but when I woke up I had a bandage where my catheter used to be. Sorry Danalyn you’ll never get to see that. But you can see the perm catheter if you’d like (to the right).

So after that I spent a few days in the hospital where I recovered. Believe me, I felt like crap. My stomach gave me some serious pain because it was infected and I had those holes in me where the tube was. I just needed to heal. So on monday when we got home I was in some serious pain. I was on vicodin at this point, since I couldn’t have anymore IV morphine. (which worked awesome btw, although I did throw up once when I got it. A whole other story there LOL.) I also had the perm catheter, which was located in my shoulder/neck area. My shoulder was sore as hell. Believe me I was popping vicodin like a drug addict.

Now, I am going to hemodialysis, 3 times a week, for 4 hours at a time. It’s about 12-15 hours a week, spent at the dialysis clinic. It’s almost kinda like having a part time job. (except I don’t get paid!) But it’s working for me and of course if it’s working then it must be worth it.


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4 thoughts on “So now I’m on hemodialysis…

  1. Pingback: Ok I am back now at hello! yoshi

  2. Hello,

    I, too, am on dialysis. I have good days and bad days. I have had two fistulas, the second is working well but the first was a joke. I hope your experience with yoour fistula wil be better than mine. The first one was in my left forearm.

    I never went the PD route mainly because I really did not want to have a tube hanging out of me having had one in the past.

    My dialysis is just about like yours. I am attached to the machine for three hours but, getting hooked up tahes about 20 min. and getting off takes about 1/2 hour. So, that shoots 4 hours or so each of the three times a week I go. I guess it is better than a long dirt nap :-)

    I am on a transplant list at UC Davis here in Northern California.

    Hang in there,

    Ward

  3. A great blog and more people need to comment. Information is a powerful medicine. Feel free to add our site to your links. We are a renal information and news site called LifeAlysis. http://www.lifealysis.com

    Thank you and God Bless
    Ross