Recent study says Dialysis 3 times a week not enough

Posted on September 22, 2011 by Yoshi

My view at Dialysis

A recent study is saying that receiving Dialysis 3 times a week may not be enough. A link here to the Forbes article. So what they’re saying is simple. Because every rotation involves a 2 day hiatus from Dialysis, that 3rd day (Monday or Tuesday) is the most dangerous day. As an ex-Dialysis patient, I have to say there might some credibility in this.

On the third day, which in my case was Tuesday, I felt the worst. It was the worst day of the week. My Dialysis schedule started at 5:30pm. So I had the entire day to go through before I received any treatment. That Tuesday was total hell, I have to admit.

Anyone who undergoes Dialysis knows how it feels. You’re at the point of kidney failure. That means you don’t produce urine. Now this may sound great, since you’ve only got to go bathroom when you have to poop. But honestly, you miss it mainly because you realize just how much it means to pee. Peeing gets rid of your toxins in your body and if you can’t pee, that means the toxins (that’s poison BTW) just accumulates in your body and well, it makes you feel like shit.

So think about it. That third day would have to be the absolute worst day of the week, right? I can go with this study then. But I have to agree with Dr. Paul Eggers. There should be more studying done. One study doesn’t mean it’s true. But honestly, how many people have to suffer before a determination is made?

Dialysis fun

Posted on May 27, 2009 by Yoshi

So far, dialysis has been going well. Since I’ve taken out my catheter and started using my fistula, I’ve had a rocky start, but things are progressing well. I’ve learned that taking the lidocaine can be a bit more comforting, but it does eventually wear out and in the 4 hours I’m at dialysis I still feel the effects of the pain. It’s Really no big deal, but I have to admit having it at first is a great comfort. It also depends on how good the tech is in sticking you. You learn which ones are your favorites. Of course, all the techs are great. It’s the nurses you have to watch for. :P

My sister will be coming up for a visit for testing to donate her kidney. Pretty awesome stuff. Here’s to hoping that she’s a match. Then I believe I’ll start to feel a lot better after I initially recover from having a new kidney. There’s some promising outlooks going on.

It figures!

Posted on May 16, 2009 by Yoshi

So today was a bad day at dialysis. For one, I didn’t get dialyzed today. Apparently the needles infiltrated my arm and my arm swoll up pretty bad. One of the techs tried to stick me again to see if they could get it going, but it didn’t work out. This only happens after I get the catheter taken out of course. Yoshi’s Law. Go figure!

So now I’m hoping I get to go in on Monday to dialyze and try not to swell up. I Really gotta watch my liquids. Luckily I do pee quite a bit, so that’s saving me somewhat. But still it can get kinda crazy. I’ll be watching my weight real carefully too. I’ll go ahead and document that last I weighed, I was 152.2 lbs.

What a Saturday!

I’ve been wondering…

Posted on May 13, 2009 by Yoshi

If I get drunk before I go to Dialysis, will dialysis sober me up? Has anyone tried this out? I know it would be Really rude to go into dialysis drunk but I’m just curious lol. I know it cleans me up of anesthesia and pain meds. I’ve already experienced that. Any thoughts?

So now I’m on hemodialysis…

Posted on February 23, 2009 by Yoshi

So now I am on hemodialysis. That’s the dialysis where there’s needles and such but I don’t have to have that yet, since my fistula isn’t in place yet. Don’t worry I’ll explain.

It all started out on a Friday. I woke up and felt horrible. I was shivering and I had a feeling I needed to do an exchange. So I got up and did an exchange. Lo behold I looked at the bag, and it was cloudy. It should be nice and clear but not this bag. It was pretty cloudy. So I started the flush process and called the dialysis clinic. I was told that I had to do the flush and then put antibiotics in the bag and let it dwell for 6 hours. Ok. No problem I said and I thought it ended.

First, when we went to use the antibiotics, I realized that we didn’t have syringes to do the transfer! So I called the unit and Meesh ended up picking up some at the clinic. Finally Meesh was able to do the antibiotics. At this point, I was feeling horrible and could hardly sit up.

A few hours later, after I took the antibiotics, I was not getting any better. Either I was not getting enough antibiotics or it wasn’t working. Then Meesh took my temp and realized it was 103.5 or something like that. The point being it was 103 or higher. That was the bell that told Meesh I need to go to the ER. So after some scheduling things around, we got my dad to take me there. Meesh ended up staying at home because she needed to stay there to get our new tv. (Yes, we got a new TV and it’s very big. 73″. You’ll find out more about it at hello! yoshi)

So me and my dad were at the ER. We were in the waiting room for about 3 hours. Now mind you the nurse when she finally saw me for triage told me she would put me on the urgent list, and it still took about 2.5 hours to get me inside the ER to be treated. Meanwhile while we were there, a gentleman who had his leg cut up by a skillsaw was bleeding out of his clothes. Obviously, this guy should have been taken care of before me, but he was still waiting in the waiting area when I went in! Sometimes, the triage at our hospital (I will not mention who) can be a bit crazy.

So I went in the ER and they took care of me nice, and I ended up getting the same doctor from when I was in the ER for my stroke. I also found out from some nurses that I was something of a legend at that hospital. Probably because I was the youngest stroke victim they’ve ever had. I wasn’t even 40 yet. I was 39. Crazy, I know.

So the doctor was on the fence. “Do I admit you in the hospital or not.” In the end, they decided to do so, because after some thought, the Nephrologist on duty had said that he wanted to pull my PD catbeter and patch me up and put a “perm catheter” in for hemodialysis.

I was then admitted to the hospital, this was about 8pm, about 8 hours after I went to the ER to get taken care of. They admitted me to the renal floor, and I finally got to be able to drain myself and they took that drain off to the lab to do some tests. I’m not quite sure what they are, but I’m sure they’re important.

At 10pm, I was finally taken down to the OR where they finally yanked my PD catheter. I have to express my sorries to the surgeon that put it in. I didn’t want to ruin her work! But I have to admit now that it’s a relief. No more feeling bloated or I can’t eat because my belly is so full of liquid. So they took it out and I was on some serious meds. I have no idea what Really happened, but when I woke up I had a bandage where my catheter used to be. Sorry Danalyn you’ll never get to see that. But you can see the perm catheter if you’d like (to the right).

So after that I spent a few days in the hospital where I recovered. Believe me, I felt like crap. My stomach gave me some serious pain because it was infected and I had those holes in me where the tube was. I just needed to heal. So on monday when we got home I was in some serious pain. I was on vicodin at this point, since I couldn’t have anymore IV morphine. (which worked awesome btw, although I did throw up once when I got it. A whole other story there LOL.) I also had the perm catheter, which was located in my shoulder/neck area. My shoulder was sore as hell. Believe me I was popping vicodin like a drug addict.

Now, I am going to hemodialysis, 3 times a week, for 4 hours at a time. It’s about 12-15 hours a week, spent at the dialysis clinic. It’s almost kinda like having a part time job. (except I don’t get paid!) But it’s working for me and of course if it’s working then it must be worth it.